There are many blogs by parents of autistic children, with more being added all the time. The subject matter in these blogs runs the whole spectrum (no pun intended) of life with autism. Some parents are trying to understand autism, some are trying to find – and encourage others to find – a cure, some are simply sharing what they learn with others, and some are just trying to cope. I hope you find this list, and the blogs on it, useful.
I expect this page to be an ever-growing work in progress. Please, if you know of – or write – a blog that you think should be on this list let me know via e-mail or in the comments.
- A Boy With Autism – A family who has a young boy with autism … just some things from a parents point of view.
- Adventures in Autism – In March of 2004 we got confirmation that our beautiful two year old son, Chandler, was autistic. Here we share his story and all we are learning about autism.
- Along the Spectrum – I’m writing this site primarily as a personal outlet for my thoughts and ideas. Hopefully it will lead to dialogue with others and provide some assistance to others that live ‘along the spectrum’. I get a lot of positive support from sharing experiences with other parents of children on the spectrum. I’m hoping this will lead to similar moments for both the author and the readers.
- Autism: Deal With It! – A blog about dealing with Autism as an adult and as a parent. Not your typical "____ caused my (child's) Autism" blog! I hope by sharing my challenges, others can help me and I can help them. Oh, and it is also a way to sell my Autism related T-Shirts (Hey, at least I am honest about it!)
- AutismLand – The Autism Reality Show starring 8-year-old Charlie
- Autism Vox – Autism mother Kristina Chew gets on her soap box.
- Autistic Conjecture of the Day – Dazed and amazed by the theories, research, and snake oil offered up as *THE* answer to autism – both its causation and cure? Well, so am I. On this, my little notebook in cyberspace, I will be collecting and publishing articles from both the past and present, dealing with autism from the medical, behaviorist, personal, naturopathic, and parenting points of view. May we all, in the midst of these multitudinous words, find what we need to move on with courage, strength, and dignity.
- Hard Won Wisdom – So, your child has been diagnosed with A.D.H.D., A.D.D, A.D.H.D.-N.O.S., L.D., Autism, Asperger's, P.D.D., P.D.D.- N.O.S., S.I.D., H.F.A., Dyslexia, Dysgraphia, Dyscalculia, or any other "diseases" that haven't even been thought up yet…As a parent and teacher…here is the blog never around when I needed it. I hope it helps!
- Hidden Recovery – Autism recovery can happen! A parent's experience with high-Functioning Autism. Diagnosed at 2 with PDD-NOS, and recovered by kindergarten. Articles and documentation by Ashley Morgan, mother
- Injecting Sense – A father's blog.
- Joy of Autism – My thoughts on life with autism, through literature, philosophy, and learning to look at the world through Adam's transparent coloured blocks…
- Left Brain / Right Brain -Web creativity and autistic logic – all under one roof!
- Living a Cryptogram – A ladder is a letter "A". A clothes hanger is a number "2". Chairs make the letter "H". Letters and numbers are everywhere. Just ask Conor.
- MOM – Not Otherwise Specified – On raising a son on the autism spectrum, progressive politics, pop culture, and coffee addiction.
- Party of Six – On raising a preteen, toddler twins, an infant and battling autism
- On the Spectrum – A clearinghouse of information about Autism Spectrum Disorders (ASDs). Got some information you want to share? Email me at chrodas@yahoo.com
- The Zoë Zone – Notes on the life, times, and development of Miss Zoë Bromage, as recorded by her mother. Also includes minor notes on updates to this website. Just in case you're unaware, Zoë is mildly autistic, so a lot of what is written here has to do with her development and therapies and so forth.
I am so glad to see a resource like this coming together! Thank you so much for putting it together and also for including my blog spot.
Comment by Brian The Autistic Jedi — 30 Mar 06 @ 1726
I’ve just stumbled on this tonight, Brett. Congrats and good job!
Estee
Comment by Estee Klar-Wolfond — 5 Apr 06 @ 0511
Thanks. I appreciate your faith in me!
This is a very good way of putting it all together. Kind of a one-stop shopping center!
Comment by r.b. — 13 Apr 06 @ 1433
Hi,
I’ve just started a blog from a parents point of view… not sure how often I’ll update it, but here’s the link.
http://a-boy-with-autism.blogspot.com/
Comment by Karen — 17 Apr 06 @ 1115
Hi!
We have started a parents blogging corner at our website http://www.jambav.com where parents can share their parenting experiences, tips and challenges. (For more details about who we are…we request you to please visit our website)
The uniqueness of the blog lies in the fact that this blog is ‘inclusive’ and has parents of both typical and differently abled children blogging.
Do visit us at http://www.jambav.com/jambav/blogs/.
We would like to also take this oppotunity to invite parents to start their own blog space with us if interested. Do write to us at wecare@jambav.com.
Thanks and looking forward to seeing you all at our blogging corner,
Vidya Ganesh.
http://www.jambav.com
Comment by Vidya Ganesh — 2 Jun 06 @ 0605
I think this is good. I have become familiar with a website called caringbrigde. It is for families to post thier stories about thier children with life threatening illnesses. I wish we could have some site like this for our stories about living with our children who have autism! Would that not be great?
Comment by jennifer pappas — 4 Sep 06 @ 0412
I was jsut trying to find any parents who have put their children on Methyle B12 or 5HDP anybody?
Comment by Jenevieve — 20 Feb 07 @ 1606
Im new to the Autism blog I am newly married to a man with a 12 year old Severely Autistic child he truly is a beautiful child unfortunately his mom takes him for granted and we are only allowed to have him every other weekend. When we get him he’s so regressed he drinks from a bottle while he’s with them cause they are too lazy to teach him how to drink he’s not potty trained so we are changing a big boys diaper. I was hoping to find a good summer program in Dallas Tx but unfortunately there are no programs out there for him. If anyone knows of one please let me know other wise this poor child will be spending his summer with Grandma and learning nothing.
Comment by Margie Thomas — 6 May 07 @ 1521
I just started a blog dicussing our experiences with the gfcf diet.
I hope to give some start-up advice, maybe a few recipes, and offer some stories about our gfcf life-style. Everyone is welcome, but I am definitely a newbie at this!
Comment by Katherine Revell — 24 Jul 07 @ 1938
Oops, see I told you I am a newbie! The site is: http://www.gfcfmommy.blogspot.com
Comment by Katherine Revell — 24 Jul 07 @ 1940
More and more autism studies seem over-intellectualized, sluggish and vacuous—a product of government funded guesswork— where elusive experts pad last minute conclusions with intellectual drivel. The drivel drives me nuts. How can academics write so much about kids they haven’t lived with? Much of the research involves brief studies of autistic children in institutions or group homes, as if random weekly, 15-minute visits over a few months birth healthy data, background, hypothesis and analysis. Case in point: Jenny McCarthy’s trip to the neurologist. As McCarthy herself admits, the doctor diagnosed her child after five minutes. Criteria? Hand flapping and lining up toys in a straight line. The kid was two years old. Then, slowly, the kid recovers. Well, back up folks. The kid has epilepsy. He got medication. After medication, he started talking. He made eye contact. He is social. He is normal. Not autism people. Not autism. This hypervigilance in diagnosing children with autism is exactly what is pushing truly autistic children to the back of the help line. It’s why autism research is now one of the most corrupt cash cows going. Think I’m making this up? Here’s the reality: After my son was diagnosed with autism, I dug up a California University that studied children with autism. Surely, they’d find my self injurious autistic child’s case interesting. A chance to really help an autistic child in major crisis. Immediately, I explained our son to an intake screener. “I’m sorry,” she interrupted. “It sounds like your son is too low functioning for our program. We work with higher functioning autistics. Self-injurious behavior requires extensive behavioral analysis, documentation and treatment modalities.” Flabbergasted by the screener’s unapologetic candor, I hung up. Later, I phoned another University. Again, the screener seemed uninterested in a case that didn’t have a direct bearing on a positive grant flow. Yes, it appeared treating autistic children with limited developmental skills was risky business. After all, if researchers don’t show immediate results—grant monies ceased. Consequently, more researchers than we’d like to imagine invent outcomes to keep the cash flowing. What a freaking joke. Anyway, I got so sick of all the scams. All the false hope. All the con artists posing as professionals that I said to hell with all you creeps and started giving my son garlic, changed his diet, gave him l-tryptophan, baths whenever he wanted, walks, massage, aromatherapy and lots of hugs and you know what? He was still autistic. He was still hitting himself, but at least he was happier, safer and his behavior was 70% reduced. Later, I discovered a skin shock therapy. That was the best thing we ever used. Totally stopped the head punching. Faded the device after seven years. Behavior came back , but not as savage and obsessive and mostly occurs when he’s in loud, chaotic settings, which is every school he’s ever been warehoused in by some apathetic lazy district. I hate public schools. They are a joke for severely autistic kids. Nothing but an army of experts who aren’t sure, don’t know and will get back to you after the Christmas, Easter and summer break. And if you call the nitwits to ask about educational progress, you find out they are either out to lunch, in a meeting, on vacation or sick. Ditto Regional Centers of California, with their brigade of fools who do nothing and I repeat nothing but write and write and write reports that nobody reads because they sit in dusty files. I say parents of autistic children, truly autistic children, should stay as far away from schools and government agenices as possible. They are total con artists.
Comment by Helena Perez — 29 Sep 07 @ 0853
There are a lot of us out there if you know where to look!!
Comment by Casdok — 29 Dec 07 @ 1848
We are a group of researchers at Columbia University who would like to compile a list of autism advocacy and nonprofit organizations in the state of California into a comprehensive directory. We are interested in organizations of all sizes, types and locations. We hope to make this directory a publicly available all-inclusive resource serving the autism community, in addition to helping us answer some of our research questions related to understanding the autism epidemic. This research is funded by the 2007 NIH Pioneer Award, to Peter Bearman.
If you work for or participate in an organization or group in California we would very much appreciate it if you could send us the name of the group and any contact information you may have. Once we build a complete list, we will contact those organizations directly.
To write us, please send an email to autism-iserp@columbia.edu. For further information on the project please visit our website at http://www.iserp.columbia.edu/centers/autism.html . Thank you in advance for your time and assistance in accomplishing this project.
Comment by autism-iserp — 11 Jan 08 @ 1951
Free Autism Conference
University of Redlands Orton Center
Redlands, CA
Saturday, March 22, 2008
9am-5pm
http://www.RedlandsAutism.org
Don’t miss this full-day workshop on Autism Spectrum Disorders for parents and professionals. University of Redlands professors and expert speakers will present a variety of topics, and discuss new perspectives on autism. This event is free and open to the community.
Please complete online registration. Register early-seating is limited and registration is required.
http://www.RedlandsAutism.org
Please share and distribute this information to parents and professionals
Thank you,
Lisa Iland
Conference Coordinator
Comment by Redlands Autism Conference — 28 Jan 08 @ 0856
I dont really know what to say
Comment by mummy /sam — 20 Mar 08 @ 0030
Hi!
…Please consider adding my blog to your list:
Our daughter is on the autism spectrum and has responded incredibly well to biomedical intervention. This blog is a mix of our experiences, her progress…and life on the alphabet-free diet!
Free-Mealer
Life on the Alphabet-Free Diet: GF/CF/EF/YF/CF/etc… Gluten-Free, Casein-Free, Egg-Free, Yeast-Free, Chocolate-Free, Tomato-Free, sometimes Corn-Free and Sugar-Free…. but NOT Taste-Free!!
Thanks,
Anna
Comment by Anna Letaw — 8 Sep 08 @ 1632
Thanks so much for the posts, my son has was born with esophageal atresia and down syndrome, and i think he may have to be tested for autism, after a bit, he has alot of complications so i hope things start looking better. Thanks again for the posts.
Comment by kayla — 7 Oct 08 @ 1315
Hi I need a game or activity that I can do with a class of adults that would teach them how to recognize a child with autism spectrum disorder. Does anyone have any ideas?
Comment by Annie — 12 Oct 08 @ 2101
I am the mother of 6 fantastic children, 3 of whom have been diagnosed on the spectrum. I do so empathize with parents who are frustrated with the lack of real substantive help, especially for more severe autism. My kids range from Aspergers to severe, but all three have dramatically improved thanks to a combination of biomedical and discrete video modeling. I was able to put together a family-centered program for my kids, find sources of funding, keep my marriage strong, home-school all 6, and still see dramatic improvements in the autism. I am giving 3 day retreats to help parents do the same. The retreats are in a beautiful mountain lodge, and combine a romantic get-away for the parents with a powerful program for treatment. The program is effective, proven, biomedical/behavioral/language based, and more than anything else, feasible. Please see autismretreat.org.
Comment by Laura Kasbar — 29 Jan 09 @ 0525
nice to know that parents with autistic children can share our blog.
if i have time i will write in my mamaspecialson.blogspot.com
Comment by maslinayazid — 13 Mar 09 @ 1135
I am a parent of an autism success story. My son had his diagnosis removed after 3 years on non-stop therapy. I mentored one other family with the same result. Please visit my blog and add it to your list if you find it worthy. I really want to help other families. Thanks, Tatianna
http://www.autismhelpandhope.wordpress.com
Comment by tdickens70 — 19 Mar 09 @ 1940
I am not sure about all of this but we have done everything we can do and my son at the age of 17 is going to be admitted to Winnebego inpt w/autims along w alot of other issue so when your child hits teenage years be aware there there are not alot of reasources
Comment by dawn goetz — 9 Jun 09 @ 0355
A site dedicated to our 5 y/o Autistic son and an effort to raise money for Biomedical & HBOT Treatments. Documents via video, images & detailed stories of our experience as well as links that have been helpful to us on our quest to better our boy and give him a life free from suffering & anxiety.
Comment by Miriam — 14 Jun 09 @ 2005
Hi I would like to hear from a mother with Autism child. As a mother I want to be able to do anything I can to help my son. What kind of advice would you give me. Please email @ Missmommy1@gmail.com or Missmommy1.blogspot.com Thank you
Comment by Haydee — 25 Jul 09 @ 0046
Hello!! I’m Brenda and I have a 4 year old boy, Sean. He started preschool this year and is having a hard time getting along with the other children. He just likes to be alone and does not want to be touched. After reading up a little on Autism, I now wonder if this may be what my son has. I want to do what is best for my son and I need help. If you have any ideas or info, please let me know. You can either comment my latest blog post or e-mail me at brenda.weber284@yahoo.com. Thank you so much.
P.S. If anyone else reads this comment and has any suggestions for me please don’t hesitate to contact me as well.
Thanks again!!
~Brenda
Comment by brenda284 — 23 Sep 09 @ 0026
This is my sons Jacobs blog, he was diagnosed with autism when he was just under 2 and he almost 3 now. Please take a look and see if is acceptable.
http://WWW.hope4jacob.com
he also has a cause page on Facebook called hope4jacob
Comment by Tracy Provencher — 29 Sep 09 @ 1142
I’ve just found this wonderful resource. I hope to be setting up my own blog soon. I’ve written an outline of my son’s stuggles since age 2 and hope to share them. He was finally properly diagnosed with Asperger’s in July of this year, he’s 8. I will comment again leaving my blog address when it’s set up.
Comment by Carla Haynie — 31 Oct 09 @ 1820
This blog is for parents of children with Asperger’s. I, myself have 2 children with Asperger’s one not as severe as the other, but both challenging in their own way. I hope to blog regularly. I’ve just posted an outline I’ve written of my 8 year old son’s struggles with Asperger’s and clinical depression.
Comment by Carla Haynie — 31 Oct 09 @ 1949
Study re: Parental Perceptions as to the Efficacy of Applied Behavior Analysis (ABA)
Are you are NJ Parent of a child with autism aged birth to 21 who is currently receiving or has received ABA interventions? If so, we are seeking research participants. Click here or copy link to participate online: https://www.surveymonkey.com/s.aspx?sm=_2bNMDc3EHUp8fM38T3KN_2f7w_3d_3d
Comment by Nicole Turon-Diaz — 3 Nov 09 @ 2050